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25 Oct 2016
Dundee Stronger Together

For the last 5 years campaigners have been fighting against the closure of the Independent Living Fund.  Disabled people were worried that ILF monies would be swallowed up by local councils who would reduce services or just count the ILF monies as part of their own income.  

In Scotland, it was thought the campaign was won with the launch of a new Scottish Independent Living Fund in May of this year.  

But this information from Glasgow indicates that at least one council is treating SILF funds as income to meet needs the council would normally fund.  

As a result individuals are losing control over money that the Scottish Government says should be theirs to spend on their care as they want.  

We need clearer rules about how local authorities treat SILF monies.  


People with learning disabilities die on average   20 years earlier than the people that live around them irrespective  of wealth, earning or geographical location.  

Some of this is due to nearly 7 out of every 10 people with learning disabilities having other health conditions.   The link of Downs Syndrome to early onset dementia and heart problems is well known.    Less well known is the occurence of a physical disability, mental health conditions or long term illnesses in other people with learning disabilities.  

Some of the things that would make people healthier are well known.  More exercise and healthy diets.  Easy to say but much harder to do.  

Recent research into the Scottish Government’s “Walk Well” programme found that there was no lasting change for people with learning disabilities through using it.  This was a 12 week programme that introduced people to walking in a structured way but when people with learning disabilities finished the course, they rarely had support workers in place who had the time to help them continue the walking programme.  

People with learning disabilities have spoken about how they find “good food” to be more expensive and when they do try and buy cheaper natural ingredients it is hard for them to prepare cooked meals using these.  

But health care is about much more than this, it is about the help from doctors, hospitals and NHS ‘24.   In our last newsletter we wrote about Stephen Armstrong’s treatment in hospital.  Many things went wrong for Stephen even though he had the support that people thought he needed.  

Many people feel they have great treatment from the NHS.  The nurses and doctors are nice and speak to them respectfully.  There are health passports, both in booklet form and electronically.  There are special nurses that are trained to help people with learning disabilities available all over Scotland.  

But as Robert Burns once said, “facts are chiels that winna ding and downa be disputed.” Facts are stubborn.  People with learning disabilities die earlier than the rest of the population, their health needs are often diagnosed late and many people have poor lifestyles.  

So what’s going wrong?  To be honest no one is really sure. We need you to tell us what is right and wrong for you or the people you support.   We will find out what is happening all over Scotland and put the answers together to help make better plans for the future.  

You can take part in our survey online at www.tinyurl.com/LDASsurvey  or we can send you a copy of a paper form and a freepost envelope to send back to us.  Just email us on This email address is being protected from spambots. You need JavaScript enabled to view it. 

Read our Easy Read Guide to the Health Survey

Download and print a copy of the survey on paper


The Learning Disability Alliance Scotland has produced a new guide to what Health and Social Care Integration might mean for people with learning disabilities. It uses a combination of Easy Read information and photo stories including the "Carry On" films to help explain what the benefits of working together are.   This will still take some time to work through but it is a fun way of exploring a challenging subject.  

health and social working working together

However this is not a study of what is actually happening on the ground with local authority and health board plans.  Further research on this will be available at a later date.   

Does  the current way of producing poverty figures underestimates by at least half  the number of disabled people and their families who live in poverty and possible by many more?

Currently Scottish Government figures say that 320,000 people who have a disabled person in their household are living in relative poverty.  The real figure may be more than 600,000 with many of them having a learning disability.  

Current figures understand poverty by setting a poverty line at 60% of average income for a  two person family, then adjusting it for different types of family sizes such as single parents with two children or a single person.    To get the number of disabled people in poverty, you simply count the number of disabled people in households below this line.     

It seem to us that these figures are a serious underestimation  because they fail to take account of the extra costs associated with disability.   From additional laundry to special diets and extra travel costs, disabled people have to spend more to live the same type of lives as people without a disability.    Further for those who rely on social care services, high charges make it worse.     

A 2014 report for the Joseph Rowntree Foundation found a way of adjusting for this.  They excluded   “disability costs” benefits such as Disability Living Allowance and Personal Independence Payment from household income, as these are given to meet the extra costs of disability.   Their research suggested the number of disabled people in poverty in England was double the official amount, about 2 million in total. 

As a result disability could be one of the key indicators of poverty in Scotland and should be given the same attention in anti poverty work as child and pensioner poverty.   

Read a longer article on this matter




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