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27 Aug 2016
John's Jolly Walking Group

The study by researchers at Glasgow University reported in Wednesday’s Herald that found children conceived during winter months were more likely to have a learning disability makes interesting reading.  Professor Jill Pell, director of the Institute of Health and Wellbeing at Glasgow University led the research which looked at information collected by the School Census covering 800,000 Scottish children.  

It is too early yet to fully understand what might cause this.  Concerns about the lack of Vitamin D caused by inadequate sunlight have featured regularly in the Scottish health conversation over recent years and it may be that this is indeed the case.  And Professor Pell, thinks that this is the cause.   She says, “"Vitamin D is very important for brain development in the child and the first three months (after conception) are the critical period when the brain develops.”  A lack of Vitamin D in the first 3 months of conception is “the most plausible explanation for the trend”

However the researchers admit they carried out no work on Vitamin D levels in pregnant mothers or any school children.  They are not even able to cite any “human related” research into the effects of reduced Vitamin D levels in pregnancy. 

As a result without any serious evidence, we are given a new scare about more people being born with learning disabilities.    At the Learning Disability Alliance Scotland, we believe that people with learning disabilities live valued and valuable lives.  There is nothing to be scared about!

We need to be careful in drawing such conclusions  from this type of research.  The research is primarily secondary analysis of existing data.   The quality of the research will depend on the quality of statistics that are being used.   The school census used does not rely on health diagnoses but uses instead diagnoses by a variety of education professionals who are using this information for their own purposes – addressing specific educational challenges.   This is a legitimate aim.  It can help teachers and teaching assistants do better work if they know more about the educational needs of their pupils.  It may also lead to more resources being made available to help in the classroom.   

This can in some cases produce a bias in arriving at a “diagnosis” or, more accurately, a “characterisation”.  Many children on the border line will be given a “diagnosis” as this is the route they can get help. 

The following links to Integrated Joint Board papers have all be imported from Chrome and were working prior.  If any of the links do not work please This email address is being protected from spambots. You need JavaScript enabled to view it.for correction.  These are all in alphabetical order.  There are more than 31 as some councils store current papers seperately from older Board papers

 

1.  http://www.aberdeencityhscp.scot/en/progress/

2.  http://committees.aberdeenshire.gov.uk/committees.aspx?commid=486

 3.  http://committees.aberdeencity.gov.uk/mgCommitteeDetails.aspx?ID=516

 4.  http://www.angus.gov.uk/info/20351/angus_health_and_social_care_partnership/801/integration_joint_integration_board_agendas_reports_and_minutes

 5.  http://www.healthytogetherargyllandbute.org.uk/jointboard.php

 6.  https://www.argyll-bute.gov.uk/health-and-social-care-partnership

7.  http://nhsforthvalley.com/about-us/health-and-social-care-integration/clackmannanshire-and-stirling/integration-joint-board-meetings-and-papers/

8.  http://egenda.dumgal.gov.uk/aksdumgal/users/public/admin/kab71.pl?cmte=IJB

9.  https://www.east-ayrshire.gov.uk/MVC/Committees/Committees/Index/406/8

Integrated Joint Boards were all fully established by the end of March 2016.  A number had been meeting over the previous years while some ran their Shadow Boards right up to the deadline. 

It is early days in the operation of Integrated Joint Boards.  So much so that there is not even harmony in what to call them.  Some just invert the letters and call them Joint Integrated Boards, one or two still call them Health and Social Care Partnership Boards. 

However these have been 3 years in the making and none of them can claim to be surprised that they are suddenly running the health and social care together.  Early directions really matter.  They set the path for future development.  Those who say it is too early to judge are making a mistake.   Once structures and priorities are established it is hard to shift huge bureaucracies that are rely on hundreds and thousands of people to make decisions and carry out their policies. 

That is why we wanted to understand what was happening with Learning Disability services in the new Integrated Joint Boards and how would the needs of this group of vulnerable adults have their needs addressed. 

We decided to examine the agendas and reports for 2 meetings for each of the Integrated Joint Boards currently operating in Scotland.   We wanted to cover wherever possible meetings since April 1st  2016 since that was the date that Boards were given full legal responsibility. 

We ignored agenda items which cover the minutes of sub committees and looked at the general headings of each agenda item.  Where it was unclear what an agenda item was about we looked at the reports in more detail.  You can see the dates of the meetings and the agenda items covered by linking here.

The agendas ranged in size from looking at 3 to over 20 agenda items. Even the minutes of the meetings gives no idea of how long the meetings take and the amount of time devoted to each item. It is possible that those looking at 3 items touched on them in more detail than those with large agendas.  But the disparity is in itself interesting given that the “democratic control” exercised by councils over all social care matters has now been transferred to half appointed, half elected Boards.  Who is it that now has authority for supervising decision making on matters of local autonomy, if items are not discussed at the Integrated Joint Boards.   

In the 62 Board Meetings that we looking at, no Board directly addressed this matter.   Of course, IJBs are busy organisations and don’t cover every part of their remit at each meeting.  Prioritisation is an important part of efficiency. 

Digging a little bit deeper in the papers managed to find one reference to a Learning Disability service review as part of an overall plan in Glasgow to transform Health and Social Care generally.  This plan was to use the Integrated Joint Board’s resources to lever other public resources into joint working on a much bigger scale.     

4 Boards directly addressed the matter of mental health (Angus, Dumfries, Glasgow and Moray).   3 of these boards looked at the coordination between in patient and community services.  The other discussed a strategy board that set up coordination meetings. It would seem that the linking of resources from the health and the social care sections was the driver for this attention. 

1 board (West Lothian) looked at issues connected to people with physical disabilities.  This was to establish a 3 year commissioning cycle of support services for people with physical disabilities. 

However Delayed Discharge and plans for changing care home for older people were discussed on 55 agenda items.   These ranged from progress updates on the numbers of people who were experiencing delayed discharge of greater that 14 days to the plans for developing more “intermediate care”. 

Intermediate Care is defined by the Joint Improvement Team as “intermediate care as a continuum of integrated community services for assessment, treatment, rehabilitation and support for older people and adults with long term conditions at times of transition in their health and support needs”.   However many of the reports seemed to describe this as a “building based” service which would help people leave hospital and move (temporarily) to a setting that would then enable them to get ready to move home again.  

 Our concern is that the focus of Integrated Joint Board will be on those very areas in which there is a strong shared interest in approach from the health and social care sector.  Some of the very success in Learning Disability support has been about establishing the predominance of social care and the social model of disability.  

 

Even though there are strong residual Learning Disabilities within the health service, the social model dominates.   Integrated Joint Boards might choose to spend much more time and resources on “priority” issues such as delayed discharges and the pathways for older people to return to the community.  

 

….. More to Follow…..

Waterloo Close NHS care facility in Kirkintilloch, East Dunbartonshire near Glasgow cares for 6 people with profound learning disabilities and should provide safe and secure care.  

Over a 2 year period following his admission,  Michael Howard, 53, who has Down’s Syndrome suffered black eyes and broken ribs at the care centre and was struck so hard that he had to be rushed to hospital.     Michael’s ordeal came to a head when he was taken to hospital on July 7, 2014, after being found covered in blood with a serious wound to his genitals.  The doctor treating him at Glasgow Royal Infirmary insisted on contacting social services.

Managers at the Waterloo Close NHS care facility had failed to call the police after any of the previous incidents, meaning the chance to gather crucial forensic evidence was lost.

His brother Neil said: “Michael had no track record of being to accident and emergency before he moved there in 2012 but suddenly he was suffering all manner of injuries that could not be explained.

 

On behalf of the Scottish Government, SCLD supports a group of people with learning disabilities from across the country to come together and talk about how The keys to life has affected them. The aim of the group is to make sure that the voices of people with learning disabilities inform how The keys to life is implemented.We would like to recruit some new people onto the group. We want to make sure the group covers a wider range of experiences. For example, we would like to include:

 

  • carers
  • People with complex needs
  • People from minority ethnic backgrounds
  • People from 18 – 25 years old
  • People from all over Scotland

Meetings happen in Edinburgh and Glasgow. SCLD will pay travel expenses.

We have written a paper with information about the group and the type of people we want to join it, and there is an application form to fill in. If you think this group is something you, or someone you know, would be interested in please read the paper and think about applying.

What is the Keys to Life Expert Group?

Application form

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