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06 May 2016
Forth Valley Stronger Together

The Scottish Labour Party published its manifesto today.  Here is our Easy Read version of the Scottish Labour Party manifesto.    We have highlighted 12 points that we think will matter to people with learning disabilities around Scotland.  Of course, many of the other issues in the manifesto will also be important but we have had to exclude some things to make it short and readable.  If there are particular issues you would like to know about or to be put into Easy Read, then please let us know and we will make the information available.   

The Scottish National Party published its manifesto today.  Here is our Easy Read version of the Scottish National Party manifesto.    We have highlighted 12 points that we think will matter to people with learning disabilities around Scotland.  Of course, many of the other issues in the manifesto will also be important but we have had to exclude some things to make it short and readable.  If there are particular issues you would like to know about or to be put into Easy Read, then please let us know and we will make the information available.

The Scottish Labour Party Manifesto is to be published next week and we will circulate a similar version as this at the time. 

We have also tried to track down Easy Read versions of the full manifesto produced by the parties themselves but so far we have only managed to find the Green Party Version  We are clear that “Plain Text” and “Large Text” are not the same as Easy Read although some parties may not be clear about the distinction.  

LIB DEMS NOW ADDED!

We have had a look at the first three manifestos from the parties in the last Scottish Parliament for the May 2016 election.  Only the Lib Dems, Greens and the Scottish Conservatives have published these so far.  We expect that the other parties will publish over the next couple of weeks.  

 We hope that they will publish full Easy Read version for those that want to read them but we have gone through the manifestos and spotted the main policies that will affect people with learning disabilities and those that support them and put them into Easy Read.  This requires us to miss some things out so please feel free to let us know if there are particular policy areas that you might be interested in.

We hope this is straightforward to use and that it will be helpful in speaking to any candidates you meet or come across in hustings over the next few weeks.  Similar version for the 2 remaining parties will follow in due course. 

 The Scottish Green Party Easy Read

The Scottish Conservative Party Easy Read

The Liberal Democratic Party Easy Read

They tried to help me daughter with a pre visit.   But in the end this made no difference.

She was put in a unit where there was a clown entertaining the other patients.  She is frightened of clowns.  The nurses had been told noise is an issue but nothing was done about the clown. 

I asked if she could be taken down stairs as she kept asking for tea which would have helped to settle her.  I was told “No.  There is no more tea being done till next morning.”   I had been told she could drink up till 8 o’clock but they still told me “No as she could get burnt”.  I told them her tea is usually 90% milk and I had a spouted cup and I would supervise her at all times.  They still refused.

She normally has her medicine at 8.30 and I asked if she could have hers first as this would calm her and get her to sleep.  However the nurses started drugs at opposite end of ward.  It was 10.30 before she finally got her meds.  By this time she was in a state and I was asked if I could calm her down as other patients needed sleep.   But she was in a four bed unit with only one other patient.  At the same time the next unit had only just had TVs and lights turned off.  Anyway my daughter was awake all night.

Next day after her operation she was put in single room where we were forgot about.   I eventually had to ask a nurse if she could sit with her so I could get to the toilet and have something to drink as I had nothing since I arrived the night before.  I had to wait an hour.   In the event I was out of the ward for only 15 mins as the canteen was closed and all I managed to get was a cold drink.

On my return to the room my daughter was hanging out of bed as she tried to get out but got stuck because of the drips and the sling her leg was in.  There was no nurse anywhere despite the alarm going off.    When the consultant came, I asked to be sent home as we were both stressed and the stay was making matters worse.  But they kept us two more days until she was off morphine before agreeing to let us home.

 

 

We have had over 300 responses to the survey on the experience of people with learning disabilities with health services.   Most have been from people with learning disabilities and we have people replying from all over Scotland. 

Most people have been happy with their experience of health services.   This has applied to all 3 services that we asked about Doctors – Hospitals – NHS 24. 

They helped with my needs

I feel I got a good experience in hospital

The doctors are very good to me. I usually don't have to wait very long to see a doctor

People have reported that Doctors have been respectful and listened to them.  Staff in hospital have been nice and looked after them.    NHS 24 has responded quickly and helped people in need.    Read the full report here

Some problems were reported. 

Some Doctors didn’t listen to what people with learning disabilities had to say.  Some people find it hard to express what they are feeling and what is wrong with them and in these cases, the doctors may jump to conclusions. 

Doctors lack time to talk to me

Doctor surgery have tried to help me but hospital don't seem to be interested

A nurse didn't ask me but asked a stranger if I had a period. I asked for females but they still put on male staff

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