“Modernisation” Plan to hit Hundreds in Glasgow

“Modernisation” Plan to hit Hundreds in Glasgow

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"Now I take Megan to a church hall, where for £5 we can sit from 11 to 3. For lunch she gets a sliced ham and white bread sandwich and a chocolate biscuit but at least its warm and dry. There’s pens and colouring books to keep her occupied.” That’s the words of one Glasgow mother describing the support she had for her daughter after her day centre for people with learning disabilities was closed down. It’s the type of story that’s not often heard. Instead we hear how “modernisation” will close day centres but replace them with a better service. Over the next few months, Glasgow City Council is going to close three of its seven centres, Hinshaw Street, Berryknowes and Summerston, for people with learning disabilities with 320…
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HOW DID THE HEALTH SERVICE TREAT YOU?

HOW DID THE HEALTH SERVICE TREAT YOU?

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We have had over 300 responses to the survey on the experience of people with learning disabilities with health services.   Most have been from people with learning disabilities and we have people replying from all over Scotland. Most people have been happy with their experience of health services.   This has applied to all 3 services that we asked about Doctors – Hospitals – NHS 24. They helped with my needs I feel I got a good experience in hospital The doctors are very good to me. I usually don't have to wait very long to see a doctor People have reported that Doctors have been respectful and listened to them.  Staff in hospital have been nice and looked after them.    NHS 24 has responded quickly and helped people in need.…
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Remembering Stephen Armstrong

Remembering Stephen Armstrong

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he Keys to Life has pledged to improve the health of people with learning disabilities  by ensuring that all those who work in health care understand the health needs of people with learning disabilities, how these can differ from the general population and to respond appropriately. Perhaps these words have never been truer than in the case of Stephen Armstrong of East Kilbride.  In 2013, Stephen died from urinary sepsis less than 72 hours after going into hospital.   There have been a range of reviews but they have left Stephen’s family unsatisfied and his sister, Katherine is now pushing for a Fatal Accident Inquiry. Before he went into hospital Stephen enjoyed an active life. He received 24/7 care all of his life and had good health and was never overweight.   He…
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We Need To Talk About Buses

We Need To Talk About Buses

Accessible Politics, Campaign, Information
BUSES are a big deal. Especially for people with little by way of alternative options at their disposal, such as the bulk of people with learning disabilities. For years now Scotland’s government, bus companies and other organisations have been working hard to make buses more accessible for vulnerable people. At present, as well as travel accessibility being a core area of the Scottish government’s Fairer Scotland for Disabled People plan, which includes the developing Disability Travel Hub, it is also an aim of the new Transport Bill. So on paper it is fair to say that progress is being made.  So why are people with learning disabilities feeling as though bus travel still does not meet their accessibility needs? Bad Experiences As most people who work with people with learning…
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Seeking a fairer Scotland

Seeking a fairer Scotland

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THE recent LDAS 2018 conference welcomed delegates from across the country to examine whether Scotland is becoming a fairer place for people with learning disabilities to live. The Scottish Government’s 5-year Fairer Scotland plan to change the lives of people with learning disabilities and ensure their human rights are realised formed the basis of the conference ‘A Fairer Scotland – How do we get there?’ The delivery plan for the UN Convention on the Rights of Persons with Disabilities is now in its second year and has set out five long-term ambitions aimed at ‘transforming’ the lives of disabled people in Scotland for the better. Among the LDAS conference delegates less than half, 45%, said they knew about the Fairer Scotland plan compared with 35% who said they did not.…
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Teacher with Down’s Syndrome thrives in Gaza classroom

Teacher with Down’s Syndrome thrives in Gaza classroom

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Hiba Al Sharfa has become the Gaza Strip’s first teacher with Down’s Syndrome, after a lifelong effort to achieve the dream. Al Sharfa teaches at Right to Live, an NGO based in the Gaza Strip that supports and cares for children with Down’s Syndrome. It works to help educate and support children with the learning disabilities with the aim of helping them integrate into mainstream society. Other members of staff say Al Sharfa is close to her students and able to better meet their needs because she understands their experiences having lived through similar struggles herself. More than 400 children are educated at the Right to Live Centre, who participate in classes including dance, crafts, and life skills. Nabil Aljaneed, director of rehabilitation at the Centre, said there is still a…
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14 things that can improve Mental Health Legislation in Scotland

14 things that can improve Mental Health Legislation in Scotland

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The Scottish Government is going review the place of learning disability and autism within the Mental Health  Act. They want the review must be open for everyone to take part in and they are open to any ideas that people have. The review can look at lots of different things. The only definite thing is that it will look at views about removing learning disability and autism from the definition of ‘mental disorder’ under the Act. This is important because: • The Mental Health Act  lets people who may require treatment, but who do not accept the need for it, may be detained in hospital, under the care of a psychiatrist, to receive such treatment. • However, learning disability and Autism are lifelong conditions, which cannot be cured or treated…
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It Kept Going Wrong

It Kept Going Wrong

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They tried to help me daughter with a pre visit.   But in the end this made no difference. She was put in a unit where there was a clown entertaining the other patients.  She is frightened of clowns.  The nurses had been told noise is an issue but nothing was done about the clown. I asked if she could be taken down stairs as she kept asking for tea which would have helped to settle her.  I was told “No.  There is no more tea being done till next morning.”   I had been told she could drink up till 8 o’clock but they still told me “No as she could get burnt”.  I told them her tea is usually 90% milk and I had a spouted cup and I would…
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Clarification to Direct Payment article in December newsletter

Clarification to Direct Payment article in December newsletter

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In our last newsletter we published a report on official government statistics published in November 2015 which showed that there had been slow progress with Direct Payments despite all the effort with the introduction of Self Directed Support.  We said in the article that we couldn’t be sure until further statistics were published in 2016. This additional information should have more on the other options included in Self Directed Support and allow everyone to make a better judgement on what has been happening- although the Scottish Government has already said that this information will be partial and will be published as “Data Under Development”.   However Falkirk Council has contacted us to express their concern that these figures do not accurately reflect their work. They have 24 people who are recorded…
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THE ILF  – FOR COUNCILS OR FOR DISABLED PEOPLE?

THE ILF – FOR COUNCILS OR FOR DISABLED PEOPLE?

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For the last 5 years campaigners have been fighting against the closure of the Independent Living Fund. Disabled people were worried that ILF monies would be swallowed up by local councils who would reduce services or just count the ILF monies as part of their own income. In Scotland, it was thought the campaign was won with the launch of a new Scottish Independent Living Fund in May of this year. But this information from Glasgow indicates that at least one council is treating SILF funds as income to meet needs the council would normally fund. As a result individuals are losing control over money that the Scottish Government says should be theirs to spend on their care as they want. We need clearer rules about how local authorities treat…
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